Event fundraising

A 12-hour pool event planned to raise funds for Theo’s Journey

A kind-hearted snooker player from Knutsford hosts an impressive 12-hour fundraiser to support the family of a youngster with a rare genetic condition.

Victory Hall member Mike Roylance will be taking part in a snooker marathon from 10 a.m. to 10 p.m. and will not leave the table all day.

He organized the challenge to raise money for Theo’s Journey – a cause close to his heart.

Theo Greenall, from Latchford, was welcomed into the world by his parents Sean and Natalie Greenall in November 2020.

During a routine examination, a midwife noticed Theo was flaccid and unresponsive to reflex tests. He was therefore admitted to the pediatric ward of Warrington Hospital.

Mike Roylance will take part in a snooker marathon

At just four weeks old, the toddler was transferred to Alder Hey Children’s Hospital where further tests were carried out and the family was diagnosed with SMA type 1 – a rare genetic condition affecting one in 10 babies 000.

Theo initially started a treatment called Spinraza which improves muscle tone and prolongs life and is available on the NHS in this country.

In November last year he started receiving Zolgensma treatment – an innovative gene therapy treatment worth £1.79million.

Since Theo’s diagnosis, his parents have set up a instagram page which documents Theo’s life and also shares a JustGiving page which aims to raise funds for future treatment and support the youngster will need.

Family friend Mike, also from Latchford, hopes to raise as much as possible to contribute to this fund.

He has organized and participated in two similar events in the past which have raised substantial sums for charity.

The 51-year-old will be kitted and kicked for the occasion, which will take place at the Grappenhall Ex-Servicemens club of which he is also a member, and he will face various opponents throughout the 12-hour period.

Mike said: “Anyone who wants to come is welcome whether they know how to play pool or not.

“It’s about participating and being there, and hopefully the little man makes an appearance as well.”

Knutsford Guardian: Sean and Natalie Greenall pictured with their son Theo

Theo, Sean and Natalie Greenall

Mike, who has been playing the sport since he was 14, also plans to hold an auction of a pool cue and case which was kindly donated by a friend – with all funds going towards the trip by Theo.

He will also donate the vest he wears to Theo’s family as a keepsake.

The event, sponsored by Mike’s employers, E. Tupling – a family business, is scheduled to take place on Saturday, April 9.

The next plan for Theo’s parents, Sean and Natalie, is to get him a specialist bath as he is limited to showering on the NHS.

It will cost £12,000.

Natalie said: “Mike is a friend of one of our family members and he shared the idea of ​​the pool fundraiser with them.

“When they told us we were so thrilled and grateful for the support.

“We then found out that Mike also lives in Latchford so he’s local to us!

“Since Mike started organizing the event, we’ve had a few phone calls with him – he’s so passionate and excited!

“What a great thing for our son Theo to do!”

To donate to Theo’s Journey and Mike’s efforts, visit here.