Event fundraising

Incurable rare disease draws attention with fundraising event – WISH-TV | Indianapolis News | Indiana Weather forecast

INDIANAPOLIS (WISH) — Organizers from the Indiana Chapter of the Huntington’s Disease Society of America will host a bowling event on Saturday to raise money for Hoosiers with the rare disease.

“It’s like Parkinson’s disease, dementia and Alzheimer’s all rolled into one,” Indiana chapter president Jessie Ondell said. “It’s a brain disease.”

The disease is incurable and it is hereditary.

“If you have the disease, you have a 50 percent chance of passing it on to each of your children,” Ondell said.

It’s a condition that Ondell says has run in his family for generations.

“My mother died from Huntington in 2002 and my sister is currently symptomatic,” Ondell said.

According to Ondell, there are about 41,000 symptomatic Americans and 200,000 people at risk.

The Indiana Chapter of the Huntington’s Disease Society of America holds three different events each year to raise funds.

Today is the Strike Out HD bowling event at 4:00 p.m. at the Woodland Bowl (Royal Pin Woodland) on East 96th Street. This is the first time the event will take place since 2019. It had not taken place in previous years due to coronavirus.

Ondell says 120 people are expected for the event today.

“Having so many people who want to come to the event and donate to the event is important,” Ondell said. “We are just grateful to everyone who has already contributed to this event.”

The goal was to raise $5,500 at today’s event. Ondell says they’ve exceeded that goal and have raised $7,500 so far.

For more information, contact Ondell at [email protected] or cclick here to visit the Indiana HDSA website.